Watching my children do things they were never supposed to be able to do. My daughter has a rare genetic disease that has caused intractable epilepsy & unfortunately this isn’t curable so we are focusing on saving her brain health and she is still in school, having a social life and maintaining when she was supposed to be in a vegetative state. My son also has a rare genetic disease and he is the only living person with his disease as this disease is what killed my youngest son.

When we were at my youngest sons funeral and they all ran to sit with me and looked at me and they all said in some form “mommy we will see him again in paradise” with tears in my eyes all I could focus on is their ability to see positivity during such a dark time.

We are moving right now so I would pay up our rent & then buy myself a new car as mine is a beater.